Let’s Make Our Sma Princess A Fairytale!

Masal Ağtaş…  

Masal baby…

She was born on April 15, 2024, in Kocaeli-Derince. Masal’s mother, Demet, is a housewife, and her father, Serhat, works as a heavy machinery operator in Kocaeli. The family from Tunceli welcomed their first child with great joy. However, this joy was overshadowed on the tenth day when the results of the heel blood test for Masal were announced.

Masal was diagnosed with SMA (Spinal Muscular Atrophy) Type-1. SMA Type-1 is the fastest progressing and most severe form of SMA. The family is fighting a great battle with the diagnosis “SMA Type-1 SMN2 copy number 2” for their baby, and they need all our support during this challenging process.

The drug used in the gene therapy called Zolgensma addresses the protein deficiency in the motor neurons that control the muscles by enabling SMN1 to produce the necessary protein. This drug is most effective when administered before any muscle loss occurs. Therefore, the treatment needs to start for Masal before any muscle loss happens.

An offer has been received from a hospital in DUBAI for Masal’s treatment. Unfortunately, the total cost, including all expenses, is 1.87 million USD. At today’s exchange rate, this amount is exactly 61 million TL, which is beyond the financial capacity of both the family and their surroundings.

Like other SMA babies, a campaign for Masal was officially launched with the permission of the governorship on May 28, 2024. Despite all efforts, the campaign has only reached 14% of its goal as of this week.

Masal is currently 2 months and 12 days old. To enable her to receive the necessary treatment and quickly regain her health, she needs support from you.

We are hoping for your help to ensure Masal can cling to life like a fairytale and have a healthy future.

How Can You Help?

To contribute to the fundraising campaign for Masal baby and help her cling to life, we are providing you with the account details to participate in the campaign.

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